Journal of Intellectual Disability Research

publication venue for

Edward Zigler's legacy in the study of persons with intellectual disability: the developmental approach and the advent of a more rigorous and compassionate science. 64:1-6. 2020
Effectiveness of interventions to increase physical activity in individuals with intellectual disabilities: a systematic review of randomised controlled trials. 63:168-191. 2019
Shared and syndrome-specific adaptive difficulties in preschoolers with Williams syndrome and autism spectrum disorder: a cross-syndrome study. 63. 2019
'More people talk to you when you have a dog' - dogs as catalysts for social inclusion of people with intellectual disabilities. 62:833-841. 2018
Differential outcome subgroups in children with autism spectrum disorder attending early intervention. 62:650-659. 2018
Intellectual disability and patient activation after release from prison: a prospective cohort study. 61:939-956. 2017
Social workers' attributions towards individuals with dual diagnosis of intellectual disability and mental illness. 61:155-167. 2017
The proportion of minimally verbal children with autism spectrum disorder in a community-based early intervention programme. 60:464-477. 2016
Weight, nutrition, food choice, and physical activity in adults with intellectual disability. 60:355-364. 2016
Observing practice leadership in intellectual and developmental disability services. 59:1081-1093. 2015
Transition to retirement and participation in mainstream community groups using active mentoring: a feasibility and outcomes evaluation with a matched comparison group. 59:703-718. 2015
The nature of affect attunement used by disability support workers interacting with adults with profound intellectual and multiple disabilities. 58:1105-1120. 2014
Practice leadership and active support in residential services for people with intellectual disabilities: an exploratory study. 58:838-850. 2014
Taking each day as it comes: staff experiences of supporting people with Down syndrome and Alzheimer's disease in group homes. 58:521-533. 2014
Responsiveness to self-report questions about loneliness: a comparison of mainstream and intellectual disability-specific instruments. 58:399-405. 2014
Psychometric comparison of the Motivation Assessment Scale (MAS) and the Questions About Behavioral Function (QABF). 57:747-757. 2013
The human rights context for ethical requirements for involving people with intellectual disability in medical research. 56:1122-1132. 2012
Identifying the barriers and facilitators to participation in physical activity for children with Down syndrome. 55:1020-1033. 2011
Planning and decision making about the future care of older group home residents and transition to residential aged care. 55:777-789. 2011
Barriers to maternal workforce participation and relationship between paid work and health. 55:511-520. 2011
Identifying facilitators and barriers to physical activity for adults with Down syndrome. 54:795-805. 2010
Emerging themes. 54:73-78. 2010
From autonomy to relationships: productive engagement with uncertainty. 54:66-72. 2010
Introduction to Counterpoint. 54:1-4. 2010
Deinstitutionalisation and community living: position statement of the Comparative Policy and Practice Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities. 54:104-112. 2010
‘It's pretty hard with our ones, they can't talk, the more able bodied can participate’: staff attitudes about the applicability of disability policies to people with severe and profound intellectual disabilities. 53:363-376. 2009
Reliability and validity of the revised Triple C: Checklist of Communicative Competencies for adults with severe and multiple disabilities. 53:44-53. 2009
Checklists for general practitioner diagnosis of depression in adults with intellectual disability. 52:930-941. 2008
Resistance, identity of resistance and empowerment among people with intellectual disabilities. 52:709-709. 2008
The competencies required of house supervisors in Victoria. 52:755-755. 2008
Holding services to account. 52:581-587. 2008
What informs and shapes ethical practice in Intellectual Disability services?. 52:608-617. 2008
A survey of people with intellectual disabilities living in residential aged care facilities in Victoria. 52:404-414. 2008
Planning and Support for People with Intellectual Disabilities. 52:265-268. 2008
People with learning disabilities in 'out-of-area' residential placements: 1. Policy context. 50:837-844. 2006
People with learning disabilities in 'out-of-area' residential placements: 2. Reasons for and effects of placement. 50:845-856. 2006
Further examination of relationships between life events and psychiatric symptoms in adults with intellectual disability. 49:839-844. 2005
Is Post-Traumatic Stress Disorder a helpful concept for adults with intellectual disability?. 49:552-559. 2005
A survey of sleep problems in autism, Asperger's disorder and typically developing children. 49:260-268. 2005
Institutional closure or deinstitutionalisation: Lessons from Victoria's institutional redevelopments. 48:414-414. 2004
The big challenge: About being a deviant resource in school. 48:399-399. 2004
The nature of informal relationships following a move from institutional to community living. 48:428-428. 2004
Understanding housing and support for people with disabilities. 48:490-490. 2004
Erratum: Challenging behaviour and insecure attachment (Journal of Intellectual Disability Research (2002) vol. 46 (503-506)). 47:499. 2003
Residential care in the community for adults with intellectual disability: needs, characteristics and services. 46:625-633. 2002
Challenging behaviour and insecure attachment. 46:503-506. 2002
Bullying and people with severe intellectual disability. 45:407-415. 2001
FMRI messenger RNA levels in male subjects with fragile-X syndrome. 44:483-483. 2000
Inclusive research and people with intellectual disabilities: Ideals and realities. 44:337-337. 2000
Key findings from a meta-analytical study on intellectual functions in Duchenne muscular dystrophy. 44:248-248. 2000
Sex, surveillance and secrecy: Sexual stories of people with intellectual disabilities. 44:317-317. 2000
Sleep problems in Down syndrome, Prader-Willi syndrome and autism spectrum disorders. 44:248-248. 2000
Beyond ethical individualism. 44:1-11. 2000
Changes in skills for people with intellectual disability: a follow-up of the Camberwell Cohort. 44:12-24. 2000
Sleep and behaviour disturbance in Prader-Willi syndrome: a questionnaire study. 43:380-392. 1999
Prevalence study of the randomized controlled trials in the Journal of Intellectual Disability Research: 1957–1994. 41:232-237. 1997
Vulnerability to criminal exploitation: influence of interpersonal competence differences among people with mental retardation. 40:8-16. 1996
Attachment and learning disability: a theoretical review informing three clinical interventions. 39:295-305. 1995
The relationship between attitude to disabled siblings and ratings of behavioural competency. 36:325-336. 1992
DERMATOGLYPHIC SOLE PATTERNS IN 21 TRISOMICS. 27:5-9. 1983
DERMATOGLYPHIC DISTANCES AND POSITION OF 21 TRISOMY MOSAICS*. 23:253-263. 1979
DERMATOGLYPHIC PATTERNS IN 9p TRISOMY SYNDROME. 22:49-68. 1978
A PROBABLE CASE OF 8q TRISOMY. 21:47-54. 1977
PSYCHOLINGUISTIG DISABILITIES OF AUTISTIC AND RETARDED CHILDREN. 21:37-45. 1977
RESULTS OF DERMATOGLYPHIC ANALYSIS. 21:305-308. 1977
RESULTS OF DERMATOGLYPHIC ANALYSIS. 21:321-329. 1977
DISCRIMINANT DIAGNOSIS OF 21-TRISOMY MOSAICISM. 20:207-219. 1976
SERUM α2-MACROGLOBULIN LEVELS IN TUBEROSE SCLEROSIS. 20:231-236. 1976
TOPOLOGICAL FORMULATION OF FINGER-TIP PATTERNS; COMPARISON OF COMPLETE AND INCOMPLETE 21 TRISOMIGS WITH NORMAL SUBJECTS. 19:121-137. 1975
ASSOCIATION OF SERUM AND RED CELL PHENOTYPES AND AUSTRALIAN ANTIGEN IN DOWN'S SYNDROME. 18:307-315. 1974
DERMATOGLYPHIC CHARACTERISTICS OF 21-TRISOMY MOSAICISM IN RELATION TO THE FULLY DEVELOPED SYNDROME AND NORMALITY. 18:209-269. 1974
THE CONTRIBUTIONS OF L. S. PENROSE TO DERMATOGLYPHICS. 17:1-17. 1973
DIAGNOSIS WITH DERMATOGLYPHIC DISCRIMINANTS. 15:185-195. 1971
COMPARATIVE STUDY OF SOLE PATTERNS IN CHROMOSOMAL ABNORMALITIES. 14:129-140. 1970
TOPOLOGICAL CLASSIFICATION OF PALMAR DERMATOGLYPHICS. 14:111-128. 1970
URINE LEVELS OF LEUCINE NAPHTHYLAMIDASE (AMINOPEPTIDASE) AND SEX CHROMOSOME ABNORMALITIES IN MAN. 13:258-266. 1969
SOME ASPECTS OF THE NEUROLOGY OF DOWN'S SYNDROME. 12:237-246. 1968
A STUDY OF DERMAL RIDGE WIDTH IN THE SECOND (PALMAR) INTERDIGITAL AREA WITH SPECIAL REFERENCE TO ANEUPLOID STATES. 11:36-42. 1967
'It's a lonely world out there': Kew Cottages Parents' Association and opposition to deinstitutionalisation 2016
A family experience when a member has an intellectual disability: What does aging bring? 2016
A scoping review of pathways to dementia diagnosis for people with and without intellectual disabilities 2016
Being in two minds: Staff's perspectives of paperwork in group homes for people with intellectual disabilities 2016
Comparing measures of ability in adolescents with intellectual disabilities 2016
Death and the disability residential home: Mining narratives to enhance practice 2016
Development of a scale to measure organisational culture in group homes 2016
Development of an evidence-based support for a decision-making practice framework to guide decision-making supporters of people with intellectual disabilities 2016
Dimensions of culture in underperforming and better group homes for people with severe intellectual disabilities 2016
Does intolerance of uncertainty contribute to insomnia symptoms in young people with autism? 2016
Does the model matter?: Comparing outcomes for people with intellectual disabilities in 'supported living' and group homes 2016
Healthy dying for people with intellectual disabilities in residential services 2016
Hospital encounters of adults with cognitive disability: Report on 10 cases 2016
Implementation of active support over time in Australia 2016
Intersectional perspectives on post-school occupation among young adults with intellectual disabilities in Sweden 2016
Locating Australia's new National Disability Insurance Scheme 2016
Long-term benefits of supported employment for adults with autism spectrum disorder 2016
Models of delivering decision-making support to people with intellectual disabilities in Australia 2016
Scientific Oral Presentations 2016
Self-advocacy: New roles strengthen self-determination but also resistance 2016
Social workers' attributions toward individuals with dual diagnosis of intellectual disability and mental illness 2016
Subjective well-being and its correlates among adults with intellectual disabilities 2016
Supporting train travel for people with communication disabilities 2016
The complexity of self-determination for people with intellectual disabilities 2016
The political participation of people with intellectual disabilities: A mapping review 2016
The process of supported decision-making: a Canadian model 2016
The relationship between habitual emotion regulation, anxiety, and depression in adolescents and young adults on the autism spectrum 2016
The role of practice leadership in active support: Impact of practice leaders' presence in services 2016
Understanding language development in a community sample: The Early Language in Victoria Study (ELVS) 2016
Understanding the culture of supported accommodation for individuals with severe/profound intellectual disabilities: Preliminary findings from 'good' services 2016
Young people with a disability leaving state care: Findings from a study conducted in Victoria, Australia 2016
The experience of anxiety in adults with autism: A qualitative analysis 2016
A collaborative group model as a method of inclusive research 2012
A study of pupil's experiences of their everyday life in the Swedish upper secondary special school - "sarskolan" 2012
Active mentoring: A person-centred retirement support model 2012
Building participation :A socially connected retirement for people with intellectual disability 2012
Everyday life for young adults with intellectual disabilities in public and private spaces 2012
Processes underlying positive relationships for adults with severe intellectual disability 2012
Social communication for adults who communicate at a symbolic but nonlinguistic level 2012
Social interaction for adults with severe intellectual disability: Finding joy in the moment 2012
Structures and processes that embed positive regard for residents as a dimension of the group home culture 2012
Understanding the development of self advocacy in Victoria, Australia: The early years 2012
Upper secondary school - and then? 2012
BARRIERS TO EMPLOYMENT FOR INDIVIDUALS WITH AUTISM SPECTRUM DISORDER: PERCEPTIONS OF AUTISTIC AND NON-AUTISTIC JOB CANDIDATES DURING A SIMULATED JOB INTERVIEW 2019
CREATING COMMUNICATION ACCESSIBILITY FOR PEOPLE WITH COMMUNICATION DISABILITIES AT POLICE STATIONS 2019
DEVELOPMENT OF A REASONABLE ADJUSTMENTS FOR INCLUSIVE EDUCATION RATING SCALE 2019
EMPOWERING FAMILIES TO USE AND OBTAIN AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) RESOURCES FOR CHILDREN WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITY 2019
ENABLING HOSPITALS TO BE MORE INCLUSIVE AND RESPONSIVE TO PEOPLE WITH INTELLECTUAL DISABILITIES 2019
EXPLORING DIMENSIONS OF CULTURE IN GOOD SERVICES FOR ADULTS WITH SEVERE AND PROFOUND INTELLECTUAL AND DEVELOPMENTAL DISABILITIES 2019
EXPLORING SERVICE MODELS FOR PROMOTING WELL-BEING AND POSITIVE OUTCOMES FOR PEOPLE WITH MILD TO BORDERLINE INTELLECTUAL DISABILITY AND AUTISTIC ADULTS WITHOUT INTELLECTUAL DISABILITY 2019
EXPLORING STAFF CULTURE IN COMMUNITY-BASED SERVICES FOR PEOPLE WITH IDD IN ENGLAND AND THE RELATIONSHIP WITH MEASURES OF QUALITY OF LIFE AND QUALITY OF SUPPORT 2019
FAMILY QUALITY OF LIFE IN FAMILIES OF CHILDREN WITH DISABILITY FROM EARLY YEARS TO SCHOOL AGE: A COMPARATIVE ANALYSIS OF AUSTRALIAN FAMILIES LIVING WITH DISABILITY 2019
FAMILY QUALITY OF LIFE WHEN THERE IS A CHILD WITH DISABILITY IN INDIA 2019
IDENTIFYING FACTORS THAT PREDICT AND SUSTAIN GOOD ACTIVE SUPPORT IN GROUP HOMES FOR PEOPLE WITH INTELLECTUAL DISABILITIES USING MULTI-LEVEL MODELLING 2019
MAINTAINING COMMUNICATION ACCESS ACROSS PUBLIC TRANSPORT IN MELBOURNE, AUSTRALIA 2019
ORGANISATIONAL STRUCTURES AND PROCESSES ASSOCIATED WITH GOOD ACTIVE SUPPORT 2019
PATTERNS OF STAFF CULTURE IN AUSTRALIAN GROUP HOMES 2019
PREDICTORS OF MENTAL HEALTH AND WELL-BEING IN RECENTLY EMPLOYED ADULTS WITH AUTISM SPECTRUM DISORDER 2019
THE PERCEPTIONS AND EXPERIENCES OF VOTING BY PEOPLE WITH INTELLECTUAL DISABILITIES: IMPLICATIONS FOR AUSTRALIAN DEMOCRACY 2019
WHO GOES WHERE? EXPLORING ACTIVE CITIZENSHIP THROUGH TRAJECTORIES AND TURNING POINTS 2019
YOUNG ADULTS WITH ID AND SUPPORTED DECISION-MAKING IN SCHOOL 2019
A prospective study of hospital encounters by people with intellectual and developmental disability and a comparison group 2019
ACCESSIBLE AND EASY READ WRITTEN INFORMATION FOR PEOPLE WITH INTELLECTUAL DISABILITIES: DEBATES AND DILEMMAS 2019
AUTISM IN THE WORKPLACE: AN EVALUATION OF THE WORK PERFORMANCE QUESTIONNAIRE (WPQ) 2019
Current leadership in context 2019
Diagnosis of autism spectrum disorder according to maternal-race ethnicity and country of birth : a register-based study 2019
Experiences of family carers managing personal budgets 2019
RISK AND PROTECTIVE FACTORS UNDERLYING SUICIDALITY IN AUTISM SPECTRUM DISORDERS 2019
THE CLINICAL UTILITY OF A FIVE-MINUTE AUTISM SCREENER IN UNDER THREE-YEAR-OLDS: THE BRIEF AUTISM DETECTION IN EARLY CHILDHOOD (BADEC) 2019
The Emergence of Congregated Settings 2019
The Group Home Culture Scale : Validation and use in Predicting Quality of Staff Support in Group Homes 2019
GENDER DIFFERENCES IN INTERNALISING PSYCHOPATHOLOGY AMONG YOUNG ADULTS ON THE AUTISM SPECTRUM 2018
INTERVENTIONS FOR CHILDREN WITH AUTISM: IDENTIFYING WHAT WORKS FOR WHOM 2018
A controlled trial of sertraline in children 2 to 6 with ASD without fragile X syndrome 2018
Global methylomic profiling in children with autism spectrum disorders 2018
Identification of molecular biomarkers predictive of response to targeted treatment in fragile X syndrome and autism spectrum disorder 2017
Metformin is a new targeted treatment for individuals with FXS 2017
Active citizenship through community living and support: Findings from the DISCIT study 2016
Ethics of time: Ensuring effective relational communication with NDIS participants who have intellectual disabilities 2016
Exploring the relationships between active support, practice leadership and staff knowledge and values 2016
FitSkills programme for young people with disabilities: Translating evidence into practice 2016
Mainstream, inclusionary and convivial places: Locating encounter between people with and without intellectual disabilities 2016
Measuring intellectual abilities in children with cerebral palsy 2016
The complex developmental needs of care leavers involved in the youth justice system in Victoria, Australia 2016
The implementation and effectiveness of progressive resistance training programmes in people with Down syndrome 2016
The role of active support in decision-making 2016
Altered Molecular Phenotypes in 22q Deletion Syndrome 2016
Does foot posture and footwear fit influence the level of physical activity of children with Down syndrome? 2016
History: Four lensmakers 2016
Self-reported quality of life of autistic adults living in Australia compared to non-autistic adults 2016
The Pathogenic Mechanism(s) of Fragile X‐Associated Tremor/Ataxia Syndrome 2016
Time use and occupational engagement of people with an intellectual disability in supported independent living 2016
Molecular biomarkers for targeted treatments in fragile x syndrome 2015
Seeing the world through their eyes: how ID staff use 'imagined constructed inner dialogue' to explore the actions and motivations of people with ID 2015
Video analyses discovery awareness 2015
The multiple molecular facets of fragile x syndrome and fmr1 associated disorders 2014
Second hit in fmr1 premutations may lead to autism spectrum disorders, supporting the two hit model of phenotypic variability 2013
"I thought it was going to be a lot harder": Community mentors supporting social inclusion 2012
Affective attunement between disability support workers and adults with profound intellectual and multiple disabilities 2012
An observational measure of practice leadership 2012
Belonging: Helping people with PMID in residential services to develop a sense of belonging 2012
Implementation of active support in Victoria, Australia: An exploratory study 2012
Parents with intellectual disability who have school-age children: A review of the literature on their strengths and support needs 2012
Policies for a good life in the community: Sustaining and improving community services for people with intellectual disabilities in difficult times 2012
Practitioners' perspectives on engaging and supporting fathers with learning difficulties 2012
Short breaks for young adults and respite for parents 2012
The cost and outcomes of skilled support for people with servere intellectual disability and complex needs 2012
Transition to retirement: Social inclusion and outcomes using the Active Mentoring model 2012
AGG interruptions: Risks of expansion to a full mutation 2011
Evaluation of MAO-A and serotonin transporter polymorphisms in the behavioural phenotypes of males with XXY, XYY, and XXYY syndromes 2010
Expression of sex chromosome genes SYBL1, ASMT, JARID, IL9r, and RPS4Y in males with sex chromosome aneuploidy 2010
Molecular and clinical correlations in fragile X syndrome and in FMR1 related disorders 2010
Newborn screening in Fragile X syndrome 2008
Assessment for dementia of Alzheimer type in Down syndrome 2008
Building inclusive communities for people with severe intellectual disability living in group homes: A story of doing 2008
Carer and GP depression checklists 2008
Comparative issues in the development of policy and programs for people with intellectual disabilities who are aging: The state of the science 2008
Drifting between two worlds - The experiences of ageing people with an intellectual disability 2008
Family and familial support of adults aging with intellectual disabilities 2008
Interactions between disability support workers and people with PMID: Different coding perspectives 2008
Participation in government disability advisory bodies: Experience of people with an ID 2008
Precarious personhood 2008
Psychiatric disorder in adults with Down syndrome 2008
Roundtable: Foundational concepts in social integration 2008
Gene dysregulation in FXTAS 2007
Amygdala dysfunction in men with the fragile X premutation 2006
FXTAS: A comparison of male vs female involvement 2006
Peripheral neuropathy in fragile X-associated tremor/ataxia syndrome 2006
The Prader Willi-like phenotype in fragile X syndrome 2006
A longitudinal study of the health needs of adults with intellectual disability (ID) 2004
Are audio diaries made by proxies a credible source of user information? 2004
Assessment of Phonological Awareness and Reading for people with complex communication needs 2004
Attitudes towards and willingness to work with people disabilities: Potential impact of a course in Augmentative and Alternative Communication (AAC) 2004
Causal factors for pica behaviour 2004
Clinical assessment of Alzheimer disease (AD) in Down syndrome (DS) and treatment with acetylcholinesterase inhibitors 2004
Epidemiology & determinants of self-injurious behaviour (SIB) 2004
Ethics at the boundary between systems, staff and offenders 2004
Factors that impact support worker use of health services for adults with intellectual disabilities (ID) 2004
Measuring the outcomes of speech pathology intervention for adults with intellectual disability (ID) and complex communication needs 2004
People with disabilities as tutors for medical students: Does it make a difference? 2004
Roundtable: Down syndrome (DS) and Alzheimer's disease (AD): Fostering international collaboration to move the agenda forward 2004
Roundtable: Social constructivism discussed 2004
Roundtable: The moral tradition of paternalism reconsidered 2004
Speech generation devices and naturalistic teaching for preschool children with autism 2004
The Triple C: Checklist of Communicative Competencies 2004
The assessment of sexual knowledge in people with an intellectual disability (ID) 2004
A virtue ethics perspective on research 2000
Executive functioning deficits in adult males with the fragile-X premutation: an emerging phenotype 2000
Facilitating transition: Elements of successful case management practice for older carers of adults with intellectual disability 2000
Family therapy and learning disability 2000
Nottingham transition symposium: A grounded theory study of bereavement 2000
Setting standards in bereavement management for clients with learning disabilities using grounded theory 2000
Scientific Poster Presentations 2016

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