A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers Academic Article uri icon

abstract

  • PRIMARY OBJECTIVE: To explore the transition experiences from hospital to home of a purposive sample of individuals with acquired brain injury (ABI). RESEARCH DESIGN: Phenomenological, qualitative design. METHODS AND PROCEDURES: Semi-structured interviews were conducted with 13 individuals with ABI (mean time since discharge = 15.2 months) and 11 family caregivers. Each interview was recorded, transcribed verbatim and then inductively analyzed. RESULTS: Through the inductive analysis process, a summary coding framework was developed that included that following eight main categories: the hospital experience; the transition process; the role of family caregivers; post-discharge services; friendship networks and community involvement; meaningful activities and time management; physical and psychological wellbeing; and barriers and facilitators. CONCLUSIONS: The results of the study provide valuable insights into the lived experiences of participants and provide evidence to support the existence of a distinct transition phase within the ABI rehabilitation continuum; additional to and closely associated with the acute, post-acute and community integration phases.

authors

  • Turner, Benjamin
  • Fleming, Jennifer
  • Cornwell, Petrea
  • Worrall, Linda
  • Ownsworth, Tamara
  • Haines, Terrence
  • Kendall, Melissa
  • Chenoweth, Lesley

publication date

  • January 2007