subject area of

• "Did I make the right decision?": The difficult and unpredictable journey of being a surrogate decision maker for a person living with dementia  Academic Article
• "I won't be around forever": Understanding the decision-making experiences of adults with severe TBI and their parents  Academic Article
• "They rush you and push you too much ... and you can't really get any good response off them': A qualitative examination of family involvement in care of people with dementia in acute care  Academic Article
• 'The biggest thing is trying to live for two people': Spousal experiences of supporting decision-making participation for partners with TBI  Academic Article
• 'We just call them people': positive regard as a dimension of culture in group homes for people with severe intellectual disability  Academic Article
• A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions  Academic Article
• A Concept Map of What Helps People with HD Live with their Condition  Academic Article
• A Review of the Measurement of Caregiver and Family Burden in Palliative Care  Academic Article
• A comparative analysis of predictors for 1-year recurrent acute coronary syndromes events, by age group: The Greek observational study of ACS (GREECS)  Academic Article
• A model of processes that underpin positive relationships for adults with severe intellectual disability  Academic Article
• A person-centred approach to family carer needs assessment and support in dementia community care in Western Australia  Academic Article
• A proposed framework of supportive and palliative care for people with high-grade glioma  Academic Article
• A qualitative study of physiotherapy education for parents of toddlers with cystic fibrosis  Academic Article
• A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers  Academic Article
• A scoping review of bereavement risk assessment measures: Implications for palliative care  Academic Article
• A study of the effectiveness of MP3 players to support family carers of people living with dementia at home  Academic Article
• Acceptability and caregiver-reported outcomes for young children with autism spectrum disorder whose parents attended a preventative population-based intervention for anxiety: A pilot study  Academic Article
• Adolescents with Type 1 Diabetes: Parental perceptions of child health and family functioning and their relationship to adolescent metabolic control  Academic Article
• Alcohol's involvement in recurrent child abuse and neglect cases  Academic Article
• An Evaluation of Well Ways, a Family Education Programme for Carers of People with a Mental Illness  Academic Article
• An evaluation of primary care led dementia diagnostic services in Bristol  Academic Article
• An investigation of the security of caregiver attachment during middle childhood in children with high-functioning autistic disorder  Academic Article
• An update on dementia training programmes in home and community care  Academic Article
• Are Supportive Services Meeting the Needs of Australians with Neurodegenerative Conditions and Their Families?  Academic Article
• Assessing spiritual well-being in residential aged care: An exploratory review  Academic Article
• Attitudes towards seclusion and restraint in mental health settings: findings from a large, community-based survey of consumers, carers and mental health professionals  Academic Article
• Augmentative and alternative communication supports for adults with autism spectrum disorders  Academic Article
• Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease"Our life has changed forever"  Academic Article
• Autism and Deficits in Attachment Behavior  Academic Article
• Barriers to maternal workforce participation and relationship between paid work and health  Academic Article
• Bereavement support for family caregivers: The gap between guidelines and practice in palliative care  Academic Article
• Beset by obstacles: A review of Australian policy development to support ageing in place for people with intellectual disability  Academic Article
• Brain injury rehabilitation: The lived experience of inpatients and their family caregivers  Academic Article
• Building Community Capacity in Bereavement Support: Lessons Learnt From Bereaved Caregivers.  Academic Article
• Care and support needs of patients and carers early post-discharge following treatment for non-malignant brain tumour: establishing a new reality  Academic Article
• Caregiver bodywork: family members' experiences of caring for a person with motor neurone disease  Academic Article
• Caregiver distress in dementia in rural Victoria  Academic Article
• Caregiver perceptions about the impact of caring for patients with wet age-related macular degeneration.  Academic Article
• Caregivers of People with Neurodegenerative Diseases: Profile and Unmet Needs from a Population-Based Survey in South Australia  Academic Article
• Caregivers’ experiences of a home support program after the hospital discharge of an older family member: a qualitative analysis  Academic Article
• Caregiving for the terminally ill: at what cost?  Academic Article
• Caring and Retirement: Crossroads and Consequences  Academic Article
• Checklists for general practitioner diagnosis of depression in adults with intellectual disability  Academic Article
• Clinical practice guidelines for dementia in Australia  Academic Article
• Comparing the Job Strain and Job Demand-Control-Support Models in Direct-Care Disability Workers: Support for Support  Academic Article
• Consideration of out-of-home placement among Israeli Jewish and Arab parents of children with disabilities  Academic Article
• Continuing professional development in mental health: Promoting dialogue and reflection through art  Academic Article
• Correlates of caring for the drinkers and others among those harmed by another's drinking  Academic Article
• Correlates of depression in adults with severe traumatic brain injury and their carers  Academic Article
• Cultural Values and Political Economic Contexts of Diabetes Among Low-Income Mexican Americans  Academic Article
• DEPENDING ON CARE: RECOGNITION OF VULNERABILITY AND THE SOCIAL CONTRIBUTION OF CARE PROVISION  Academic Article
• Defining seclusion and restraint: legal and policy definitions versus consumer and carer perspectives  Academic Article
• Depression and stroke: a common but often unrecognized combination  Academic Article
• Descriptive study of carers' support, encouragement and modelling of healthy lifestyle behaviours in residential out-of-home care  Academic Article
• Developing a falls prevention program for community-dwelling stroke survivors in Singapore: client and caregiver perspectives  Academic Article
• Development and initial validation of a family appraisal of caregiving questionnaire for palliative care  Academic Article
• Development and pilot testing of the "focus on the person" form: Supporting care transitions for people with dementia  Academic Article
• Development of a conceptual model of cancer caregiver health literacy  Academic Article
• Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing  Academic Article
• Dignity therapy for people with motor neuron disease and their family caregivers: A feasibility study  Academic Article
• Do family-oriented interventions reduce poststroke depression? A systematic review and recommendations for practice  Academic Article
• Dying with motor neurone disease, what can we learn from family caregivers?  Academic Article
• Early childhood aetiology of mental health problems: a longitudinal population-based study  Academic Article
• Ecomapping: an innovative research tool for nurses  Academic Article
• Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia: a systematic review  Academic Article
• Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia: a systematic review protocol  Academic Article
• Effects and meanings of a person-centred and health-promoting intervention in home care services - a study protocol of a non-randomised controlled trial  Academic Article
• Enabling a family caregiver-led assessment of support needs in home-based palliative care: Potential translation into practice  Academic Article
• Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review  Academic Article
• Evaluating the impact of the Dementia Care in Hospitals Program (DCHP) on hospital-acquired complications: Study protocol  Academic Article
• Evidence-based occupational therapy for people with dementia and their families: What clinical practice guidelines tell us and implications for practice  Academic Article
• Expectations of care within marriage for older couples  Academic Article
• Experiences of caregivers of people with Parkinson’s disease in Singapore: a qualitative analysis  Academic Article
• Experiences of supporting people with Down syndrome and Alzheimer's disease in aged care and family environments  Academic Article
• Exploring the needs of diverse consumers experiencing mental illness and their families through family psychoeducation  Academic Article
• Exploring the support needs of family caregivers of patients with brain cancer using the CSNAT: A comparative study with other cancer groups  Academic Article
• Facilitating Change and Adaptation: The Experiences of Current and Bereaved Carers of Patients with Severe Chronic Obstructive Pulmonary Disease  Academic Article
• Facilitators to support the implementation of injury prevention training in youth handball: A concept mapping approach  Academic Article
• Facing the challenges of primary progressive aphasia: The spousal perspective  Academic Article
• Factors Influencing Outcomes for Family Caregivers of Persons Receiving Palliative Care: Toward an Integrated Model  Academic Article
• Factors affecting the implementation of childhood vaccination communication strategies in Nigeria: a qualitative study  Academic Article
• Factors associated with the quality of life of family caregivers for leukemia patients in China  Academic Article
• Falls in older people receiving in-home informal care across Victoria: Influence on care recipients and caregivers  Academic Article
• Family Caregivers’ Preparations for Death: A Qualitative Analysis  Academic Article
• Family caregiver participation in palliative care research: challenging the myth  Academic Article
• Family caregivers of adults with acquired physical disability: Thai case-control study  Academic Article
• Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey  Academic Article
• Family caring of older adults with intellectual disability and coping according to loci of responsibility  Academic Article
• Family members’ experiences of driving disruption after acquired brain injury  Academic Article
• Family-assisted therapy empowered families of older people transitioning from hospital to the community: a qualitative study  Academic Article
• Family-to-Family Link Up Program: A community-based initiative supporting families caring for someone with an acquired brain injury  Academic Article
• Few urban–rural differences in older carers' access to community services  Academic Article
• Guidance for community-based caregivers in assisting people with moderate to severe traumatic brain injury with transfers and manual handling: evidence and key stakeholder perspectives  Academic Article
• HIV and AIDS: Issues for women in Australia  Academic Article
• Hanging on to Some Autonomy in Decisionmaking: How do Spouse Carers Support this?  Academic Article
• Health and Well-Being of Spouse Caregivers and the Widowed  Academic Article
• Health care professionals' perspectives of living and dying with primary malignant glioma: Implications for a unique cancer trajectory  Academic Article
• Health literacy of caregivers of adult care recipients: A systematic scoping review  Academic Article
• Health professionals? attitudes toward caring for people with hepatitis C  Academic Article
• Health utility scores of family caregivers for leukemia patients measured by EQ-5D-3L: a cross-sectional survey in China  Academic Article
• Health-related impairments in young children with ADHD: a community-based study  Academic Article
• Health-related quality of life and strain in caregivers of Australians with Parkinson’s disease: An observational study  Academic Article
• Help seeking in older Asian people with dementia in Melbourne: Using the Cultural Exchange Model to explore barriers and enablers  Academic Article
• Helping Carers Care: An exploratory study of factors impacting informal family carers and their use of aged care services  Academic Article
• Helping someone with problem drug use: a delphi consensus study of consumers, carers, and clinicians  Academic Article
• Home palliative care services increase the chance of adults with advanced illness dying at home and reduce symptom burden without impact on caregiver grief  Comment
• Hospital Discharge as Experienced by Family Carers of People with Dementia: A Case for Quality Improvement  Academic Article
• Hospital Versus Home Care for the Acutely Mentally Ill? Preferences of Caregivers Who Have Experienced Both Forms of Service  Academic Article
• Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence  Academic Article
• Hospital discharge: recommendations for performance improvement for family carers of people with dementia  Academic Article
• Hospital experiences of older people with intellectual disability: Responses of group home staff and family members  Academic Article
• Hospital postdischarge intervention trialled with family caregivers of older people in Western Australia: potential translation into practice  Academic Article
• How calls from carers, friends and family members of someone affected by cancer differ from those made by people diagnosed with cancer; analysis of 4 years of South Australian Cancer Council Helpline data  Academic Article
• Identification and Measurement of Productive Behaviors in Senile Dementia of the Alzheimer Type  Academic Article
• Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment Tool  Academic Article
• Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australia  Academic Article
• Illness Cognitions Among Adolescents and Young Adults Who Have a Parent with Cancer: a Qualitative Exploration Using the Common-Sense Model of Self-regulation as a Framework  Academic Article
• Immigrant Women's Views About Care During Labor and Birth: An Australian Study of Vietnamese, Turkish, and Filipino Women  Academic Article
• Impact of caring for a school-aged child with a disability: Understanding mothers’ perspectives  Academic Article
• Impact of cognitive and physical impairment on carer burden and quality of life  Academic Article
• Indicators of long-term family functioning following severe traumatic brain injury in adults  Academic Article
• Informal carers and wound management: An integrative literature review  Academic Article
• Information needs for designing a home monitoring system for children with medical complexity  Academic Article
• Involving family members in physiotherapy for older people transitioning from hospital to the community: a qualitative analysis  Academic Article
• Is It Feasible and Desirable to Collect Voluntarily Quality and Outcome Data Nationally in Palliative Oncology Care?  Academic Article
• Is cost effectiveness sustained after weekend inpatient rehabilitation? 12 month follow up from a randomized controlled trial  Academic Article
• Karmic quest: Thai family caregivers promoting a peaceful death for people with AIDS  Academic Article
• Managing Shame and Stigma: Case Studies of Female Carers of People With AIDS in Southern Thailand  Academic Article
• Measuring Time Spent Caring For Drinkers and Their Dependents  Academic Article
• Measuring cancer caregiver health literacy: Validation of the Health Literacy of Caregivers Scale–Cancer (HLCS‐C) in an Australian population  Academic Article
• Measuring the positive and negative aspects of the caring role in community versus aged care setting  Academic Article
• Medication Adherence in Schizophrenia: Exploring Patients', Carers' and Professionals' Views  Academic Article
• Medication management: The perspectives of people with dementia and family carers  Academic Article
• Minimising harm to older Victorians from heatwaves: A qualitative study of the role of community-based health profession and carer organisations  Academic Article
• Models of care for socially isolated older rural carers: barriers and implications.  Academic Article
• Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: An exploratory qualitative study  Academic Article
• Naloxone for administration by peers in cases of heroin overdose  Academic Article
• Non-finite loss and emotional labour: family caregivers? experiences of living with motor neurone disease  Academic Article
• Non-use of respite services - a gendered perspective [Letter]  Letter
• Occupational therapy intervention in mental health should be individualised, occupation focussed, promote inclusion and occur in the context of an authentic relationship  Academic Article
• Offering Hope to Caregivers is a Transcultural Nursing Opportunity  Editorial Article
• Outcomes for family carers of a nurse-delivered hospital discharge intervention for older people (the Further Enabling Care at Home Program): Single blind randomised controlled trial  Academic Article
• PTSD in Heart Transplant Recipients and Their Primary Family Caregivers  Academic Article
• Palliative Care for Families: Remembering the Hidden Patients  Academic Article
• Palliative care and support for people with neurodegenerative conditions and their carers  Academic Article
• Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008)  Academic Article
• Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008)  Academic Article
• Patient and health‐care impact of a pilot rheumatic heart disease screening program  Academic Article
• Perceived service and support needs during transition from hospital to home following acquired brain injury  Academic Article
• Perceptions and experiences of childhood vaccination communication strategies among caregivers and health workers in Nigeria: A qualitative study  Academic Article
• Perceptions of communication before and after a speech pathology intervention for an adult with intellectual disability  Academic Article
• Perceptions of recovery during the early transition phase from hospital to home following acquired brain injury: A journey of discovery  Academic Article
• Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies  Academic Article
• Planning and decision making about the future care of older group home residents and transition to residential aged care  Academic Article
• Predictors of Complicated Grief: A Systematic Review of Empirical Studies  Academic Article
• Predictors of parent–child interaction style in dyads with autism  Academic Article
• Preparedness for caregiving: A phenomenological study of the experiences of rural Australian family palliative carers  Academic Article
• Primary care-led dementia diagnosis services in South Gloucestershire: themes from people and families living with dementia and health care professionals  Academic Article
• Profiling early outcomes during the transition from hospital to home after brain injury  Academic Article
• Protocol for a prospective longitudinal study investigating the participation and educational trajectories of Australian students with autism  Academic Article
• Protocol for a randomised controlled trial of an outreach support program for family carers of older people discharged from hospital  Academic Article
• Providing support to surrogate decision-makers for people living with dementia: healthcare professional, organisational and community responsibilities  Academic Article
• Psychological Distress and Family Satisfaction Following Traumatic Brain Injury: Injured Individuals and Their Primary, Secondary, and Tertiary Carers  Academic Article
• Psychometric testing of the Family-Carer Diabetes Management Self-Efficacy Scale  Academic Article
• Qualitative focus groups with stakeholders identify new potential outcomes related to vaccination communication  Academic Article
• Quality of Life and Social Isolation Among Caregivers of Adults with Schizophrenia: Policy and Outcomes  Academic Article
• Randomized controlled trial of a family-oriented self-management program to improve self-efficacy, glycemic control and quality of life among Thai individuals with Type 2 diabetes  Academic Article
• Recovery, medication and shared responsibility in mental health care  Academic Article
• Reducing the psychosocial impact of aphasia on mood and quality of life in people with aphasia and the impact of caregiving in family members through the Aphasia Action Success Knowledge (Aphasia ASK) program: study protocol for a randomized controlled trial  Academic Article
• Reengagement in Meaningful Occupations During the Transition From Hospital to Home for People With Acquired Brain Injury and Their Family Caregivers  Conference Paper
• Reflections on life: Experiences of individuals with brain injury during the transition from hospital to home  Academic Article
• Relation Among Anxiety and Family Burden in Primary First-Degree Caregivers of Outpatients with Mental Disorders in Turkey  Academic Article
• Relations Among Internalized Stigmatization, Depressive Symptom Frequency and Family Loading in First-degree Caregivers of the Patients Treated in the Psychiatry Clinic of a State Hospital  Academic Article
• Relationships between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities  Academic Article
• Reliability and validity of the revised Triple C: Checklist of Communicative Competencies for adults with severe and multiple disabilities  Academic Article
• Reliability testing of the FAMCARE-2 scale: measuring family carer satisfaction with palliative care  Academic Article
• Reported experiences of bereavement support in Western Australia: A pilot study  Academic Article
• Research Priorities in CKD: Report of a National Workshop Conducted in Australia  Academic Article
• Research priority setting in childhood chronic disease: a systematic review  Academic Article
• Research priority setting in organ transplantation: a systematic review  Academic Article
• Response to commentary by Manthorpe J (2009) Commentary on Bauer M, Fitzgerald L, Haesler E & Manfrin M (2009) Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence.Journal Clinical Nursing18, 2539-2546  Academic Article
• School-age outcomes of early intervention for preterm infants and their parents: a randomized trial  Academic Article
• Search for a cure: narratives of Thai family caregivers living with a person with AIDS  Academic Article
• Self-report and caregiver-report of sleep and psychopathology in children with high-functioning autism spectrum disorder: A pilot study  Academic Article
• Sentinel Events During the Transition From Hospital to Home: A Longitudinal Study of Women With Traumatic Brain Injury  Academic Article
• Service user views and expectations of UK-registered mental health nurses: A systematic review of empirical research  Academic Article
• Service utilisation by carers of people with dementia in rural Victoria  Academic Article
• Social aspects of caregiving for people living with motor neurone disease: Their relationships to carer well-being  Academic Article
• Social participation and family carers of people living with dementia in Australia  Academic Article
• Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research  Academic Article
• Study protocol: developing a decision system for inclusive housing: applying a systematic, mixed-method quasi-experimental design  Academic Article
• Support interventions for caregivers of physically disabled adults: A systematic review  Academic Article
• Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial  Academic Article
• Supporting lay carers in end of life care: current gaps and future priorities  Academic Article
• Taking each day as it comes: staff experiences of supporting people with Down syndrome and Alzheimer's disease in group homes  Academic Article
• Temporal profiles of physical health in family members of heart transplant recipients: Predictors of health change during caregiving.  Academic Article
• Terminally-ill people living alone without a caregiver: an Australian national scoping study of palliative care needs  Academic Article
• The Role of Attachment in Current and Future Parent Caregiving  Academic Article
• The Stroke and Carer Optimal Health Program (SCOHP) to enhance psychosocial health: study protocol for a randomized controlled trial  Academic Article
• The best day of the week: New technology enhancing quality of life in a care home  Academic Article
• The challenges and suffering of caring for people with primary malignant glioma: qualitative perspectives on improving current supportive and palliative care practices  Academic Article
• The cost-effectiveness of a telephone-based intervention to support caregivers of older people discharged from hospital  Academic Article
• The dynamics of socio-connective trust within support networks accessed by informal caregivers  Academic Article
• The experience of discharge for patients with an acquired brain injury from the inpatient to the community setting: A qualitative review  Academic Article
• The health and wellbeing of informal caregivers: a review and study program  Academic Article
• The impact of care recipient falls on caregivers  Academic Article
• The impact of incontinence on older spousal caregivers  Academic Article
• The impact of supporting family caregivers before bereavement on outcomes after bereavement: Adequacy of end-of-life support and achievement of preferred place of death  Academic Article
• The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial  Academic Article
• The influence of maltreatment history and out-of-home-care on children’s language and social skills  Academic Article
• The lived experience of providing care and support services for Holocaust survivors in Australia  Academic Article
• The nature of affect attunement used by disability support workers interacting with adults with profound intellectual and multiple disabilities  Academic Article
• The person in the disabled body: a perspective on culture and personhood from the margins  Academic Article
• The relationship between attitude to disabled siblings and ratings of behavioural competency  Academic Article
• The role of rehabilitation in patients undergoing oesophagectomy for cancer and pre-malignant disease: A qualitative exploration of the views of patients, carers and healthcare providers  Academic Article
• The transition from hospital to home for individuals with acquired brain injury: A literature review and research recommendations  Academic Article
• The use of carer assisted adherence therapy for people with Parkinson's disease and their carers (CAAT-PARK): Study protocol for a randomised controlled trial  Academic Article
• Till Death Us Do Part? A Critical Analysis of Obligation and Choice for Spousal Caregivers  Academic Article
• Training family to assist with physiotherapy for older people transitioning from hospital to the community: a pilot randomized controlled trial  Academic Article
• Training to Enhance Partnerships Between Mental Health Professionals and Family Caregivers: A Comparative Study  Academic Article
• Transition to work: perspectives from the autism spectrum  Academic Article
• Transitions into informal caregiving and out of paid employment of women in their 50s  Academic Article
• Translating CBT for Voices into a Program for Carers: A Pilot Study  Academic Article
• Understanding decisions made about hepatitis C treatment by couples who inject drugs  Academic Article
• Understanding receptivity to informal supportive cancer care in regional and rural Australia: a Heideggerian analysis  Academic Article
• Uptake of a newly implemented advance care planning program in a dementia diagnostic service  Academic Article
• Use of quality information in decision-making about health and social care services - a systematic review  Academic Article
• Use of the Distress Thermometer in a cancer helpline context: Can it detect changes in distress, is it acceptable to nurses and callers, and do high scores lead to internal referrals?  Academic Article
• Validity and reliability of the EQ-5D-5L in family caregivers of leukemia patients  Academic Article
• Violence against children in Afghanistan: Concerns and opportunities for positive change  Academic Article
• What do older Australians want?  Academic Article
• Which behaviours? Identifying the most common and burdensome behaviour changes in amyotrophic lateral sclerosis  Academic Article
• Who's there and who cares: age as an indicator of social support networks for caregivers among people living with motor neurone disease  Academic Article
• Women's views and experiences of maternity care: A study of immigrant Afghan women in Melbourne, Australia  Academic Article
• ‘How can we go on caring when nobody here cares about us?’ Australian public maternity units as contested care sites  Academic Article
• ‘It’s important that we learn too’: Empowering parents to facilitate participation in physical activity for children and youth with disabilities  Academic Article
• “Communicate to vaccinate”: the development of a taxonomy of communication interventions to improve routine childhood vaccination  Academic Article
• “I’m trying to stop things before they happen": Carers’ contributions to patient safety in the hospital setting  Academic Article